Recently in By the Author Category

This project is designed to help author Scott Rains.

 This past December Rolling Rains blog author Scott Rains had some health issues. 

His colleagues started a campaign to support his new lifestyle at Go Fund Me.
There is less than $3,500 to get to our goal and Give Scott a Lift. Thanks to the generosity of each of our donors, Scott and Patricia have been able to put down a deposit for the track system. 
Please join me in making one final push to invite others to participate in this campaign of caring and gratitude to Scott. If everyone who already donated persuades JUST ONE OR TWO more people to give, we will achieve our goal in no time. Can we wrap this up by June 1? 

Update After an Absence

On New Year's Day 2015 the character of the Rolling Rains site changed due to a diagnosis of two new tumors for Scott Rains.

With these brain tumors I will continue to post but less frequently and with a more biographical or less travelogue tone.

A Career Shift to Universal Design

Rosemarie sitting on bathtub deck.jpgRosemarie Rossetti says accessible features add value to new houses 

Rosemarie Rossetti's 3-year-old dream house became instantly useless in 1998 when an 80-foot tree fell on her while she was bicycling.

Paralyzed from the waist down, Rossetti was suddenly faced with inaccessible entries, wall plugs that were too low, counter-tops that were too high, bathroom doors that were not wide enough and shower stalls that were impossible to use without help.

Rossetti has turned that awareness into a career as a speaker, trainer, consultant and writer who promotes accessibility in the home building industry.

She is scheduled to moderate a discussion on "Universal Design" and accessibility at a Jan. 29 Housing and Construction Summit sponsored by the Home Buildings Association of Greater Grand Rapids (HBAGGR) at the Pinnacle Center in Hudsonville.

To test and demonstrate her principles, Rossetti and her husband, Mark Leder, have built a national demonstration home and garden, the Universal Design Living in metropolitan Columbus, Ohio.

For the full article by By Jim Harger |  see:

Culture in the Further Development of Universal Design

Scott Rains, D. Min


Reprinted from Design for All India:

By now most readers of Design for All India have a healthy grasp of Universal Design. Many, perhaps most, have become highly competent in its application as is evident from the articles appearing in past volumes and today. Beyond technical mastery of the Seven Principles, knowledge of best-of-breed solutions, and familiarity with allied concepts such as Visitability, Adaptive Technology, or anthropometrics there is a cultural component to this design approach that is unquantifiably - but undeniably - transforming Universal Design. By systematically and thoroughly examining this cultural component in the coming decade we will discover the true nature of Universal Design to be social sustainability.

Defining the Cultural Component

There are two ways to define this cultural component.

The first is to take the generally accepted meaning of culture as a social system involving ethnicity, nationality, language, arts, shared values or some combination of these elements to define a coherent and dynamic system. The second is to apply the term culture to that system in relationship to persons with disabilities as a whole (pan-disability culture) or as various sub-groups (blind, deaf, deaf-blind, spinal cord injured, post-polio cultures).

Research into response to Universal Design in this first domain is still in its infancy. A rich body of literature will result from future inquiries into adoption, rejection, and adaptation of Universal Design by cultures as they have been traditionally defined. Such study can provide a complementary approach to other inquiries into disability in the field of Disability Studies.

Historically Universal Design arose in the 1970's as a product of the Disability Rights Movement in the United States. Closely associated with the work and teaching of North Carolina architect and quadriplegic Ron Mace it began to gain widespread acceptance in the 1990's through a dissemination process that has not been well documented. One theme in that documentation will be the interplay between the cultural values embedded in Universal Design, either intentionally or unintentionally, and those held in locations where it is introduced.

Anecdotal evidence indicates integration of Universal Design in Japan's Mitsubishi, Toto, NTT DoCoMo and a uniquely Korean appropriation of Universal Design at Samsung. Reference to the Tao and the principle of balance symbolized in Tae Kuk are being integrated into the approach as applied to product design by the latter. Research by Thai scholar Antika Sawadsri (2006) on affective responses to Universal Design in Tai domestic settings is the first of what ought to be a series of similar studies done around the world. Such a micro-scale look at cultural factors involved in receptivity to Universal Design will provide uniquely targeted guidance to social planners and businesses attempting macro-scale Universal Design projects in the same social conditions.

As successful application and adaptive enculturation of Universal Design occurs there will be impact beyond the predictable further inclusion of persons with disabilities into the economic mainstream. From the earliest conversations leading to what we now know as Universal Design pioneer Elaine Ostroff was involved in the arts and incorporating Universal Design. Other positive secondary effects of adoption will include the importation and fabrication of new materials, dissemination of new designs and new construction methods, and the economic enhancement of those able to consult, design, or build according to a culturally appropriate but inclusive norm as populations age. In areas where an age-inversion causes the numbers of elderly to exceed those of youth, adoption of enculturated Universal Design in infrastructure, products, and services will become necessary not only for social cohesion but as a user demand due to the natural conservatism common with aging.

Defining Universal Design

In order to pursue this research priority and ensure meaningful and generalizable results it is important that researchers share a common definition of Universal Design. That definition is found in the Seven Principles of Universal Design but requires ongoing attention to evolving definitions of disability and to local permutations of Universal Design such as Design for All.

The Principles of Universal Design are:
1. Equitable Use: The design does not disadvantage or stigmatize any group of users.

2. Flexibility in Use: The design accommodates a wide range of individual preferences and abilities.

3. Simple, Intuitive Use: Use of the design is easy to understand, regardless of the user's experience, knowledge, language skills, or current concentration level.

4. Perceptible Information: The design communicates necessary information effectively to the user, regardless of ambient conditions or the user's sensory abilities.

5. Tolerance for Error: The design minimizes hazards and the adverse consequences of accidental or unintended actions.

6. Low Physical Effort: The design can be used efficiently and comfortably, and with a minimum of fatigue.

7. Size and Space for Approach & Use: Appropriate size and space is provided for approach, reach, manipulation, and use, regardless of the user's body size, posture, or mobility.[1]

Adaptive Environments describes Universal Design as:

Universal Design is a framework for the design of places, things, information, communication and policy to be usable by the widest range of people operating in the widest range of situations without special or separate design. Most simply, Universal Design is human-centered design of everything with everyone in mind.

Universal Design is also called Inclusive Design, Design-for-All and Lifespan Design. It is not a design style but an orientation to any design process that starts with a responsibility to the experience of the user.

Current trends are toward a functional rather than a medical diagnostic approach to defining disability. The World Health Organization (WHO) reinforces that with its International Classification of Functioning, Disability and Health (ICF 2001). This aligns well with the third of the three theoretical models of disability - Charity, Medical, and Social (or "Social Interpretation" see Gabel, "Disability Studies in Education"[2].) The latter defines disability as an interaction between function and environment.

Rudiger Leidner of NATKO made a distinction between US conceptualizations of Universal Design and a European reformulation known as Design for All in his 2006 presentation "Tourism Accessible for All in Europe":

"...the main difference between the D[esign] F[or] A[all] idea and similar approaches such as "Universal Design" is that the targeted users should be involved in the process of product development."[3]

The designation as Lifespan Design referred to in the citation from Adaptive Environments above captures the observation that human functionality changes through the natural course of maturation and aging. It reminds designers that the value of a product is not the only its durability through time. Predictable changes in the functional abilities of the user may prove to be more important measures of value. Large-scale changes in the ratio between the young and the old are poised to be socially disruptive in ways that immediate adoption of Universal Design can mitigate.

Studies to determine the culturally contextual rationales for accepting Universal Design will become increasingly essential. Already the narrative behind Universal Design projects for seniors or for people with disabilities differs. Public perception of the social value of publicly-funded Universal Design projects takes on added importance in times of scarcity of public resources.

The aging segment of the population appears to figure more heavily than the disability community in Japan's adoption of Universal Design. While in the US arguably the strongest non-governmental promoter of Universal Design, the non-profit AARP through its Home Design resources, conferences, and workshops educates on the concept without reference to its origins in the Disability Rights Movement or its foundation in disability culture. This appears to be a deliberate marketing strategy to present only images of "healthy" attractive seniors.

These and other examples serve to alert us to the reality that Universal Design applied to infrastructure may equally benefit both seniors and people with disabilities while the political discourse attached to such projects may work to drive a wedge between two groups with common interests and needs.

Culture(s) of Disability

Disability culture or disability cultures offer a second window of inquiry into the meaning and maturation of Universal Design as a global phenomenon.

Some have theorized that while definitions of disability have been imposed by non-disabled persons cultures of disability have risen up to protect the interests, identities, and political voice of those gathered into these categories. Current understandings emphasizing the multiplicity of social categories any individual is involved in and the multifaceted interactive nature of resistance to social movements' demands for change provide a fluid definition of culture and energize artistic production with a disability "voice." Colin Barnes and Geoff Mercer provide an overview of the topic in Chapter 21 of the Handbook of Disability Studies entitled "Disability Culture."[4]

Defining, distinguishing, and uniting disability cultures remains problematic. One can list examples of distinctiveness: deaf culture maintains its own languages, blind culture it own institutions, and mobility impaired culture its own politics.

Conflicts arise when specific design solutions are confused with Universal Design itself.

The usefulness of curbs at corners for orienting blind pedestrians and the necessity of curb cuts for wheelchairs lead some to question the "universality" of some solutions commonly associated with Universal Design. It is important to recall that Universal Design is a design approach not a catalog of solutions or any specific construct such as a ramp or a flashing fire alarm. Universal Design understood as design and not a canon of prescribed solutions is capable of generating outcomes that address the unique needs disability groups with differing functional abilities.

The questions arise for professionals, "Who is responsible for maintaining that clarity of definition at the academic level? At the level of professional discourse? When working with stakeholders and clients?"

Language is a knowledge management system. Careful use of language is called for to both adequately communicate the process of Universal Design and to facilitate competing cultural values existing even within the disability community.

The "Culture" of Construction

The phrase "construction of culture" is commonplace in post-modernist discussions of the nature of culture. Similarly the "construction of disability" is a phrase indicating the social, and thus changeable, nature of the concept and social system known as disability. In such dialogue "avoiding the (re)construction of disability" is a responsibility of those who claim to be working in the interest of social inclusion such as practitioners of Universal Design. Part of that responsibility is to avoid design that stigmatizes.

There are also professional mandates upon those who work with designers in the fabrication phase of products and spaces. We might designate these as part of a "culture of construction" that seeks to resolve all discussion to specifications and measurements that are actionable within their domain of responsibility. The influence of this approach can also manifest from within the disability community.

Examples include accessibility auditor trainings that do not include an introduction to Universal Design principles or to the process and place of design in project development. The results are then evident in accessibility auditing survey tools that proscribe rather than describe. Mandated minimum accessibility standards from building codes are fashioned into check sheets or other proscriptive heuristics for gathering data. This data is then published in directories of building accessibility. The tools are thus unable to capture innovative (universally designed) solutions and the auditors unprepared to recognize them as good design. This self-defeating approach rewards businesses for mere minimum compliance and penalizes those who solve design problems in novel ways.

One museum designer reported a usability study of one of her projects conducted by persons with disabilities[5]. They immediately flagged the lack of the typical (stigmatizing) artifacts of "accessibility": grab bars and tactile navigation in colors, materials, and textures that broke the integrity of the design of the space, Braille captioning that was easily located visually, etc. After an orientation with the designer they agreed that the design's non-traditional integration of handholds, navigation aids, and placement of Braille were superior as well as non-stigmatizing.

The auditors working from an internalized list of "accessibility features" had themselves failed to realize that the designer had achieved both accessibility and avoided reconstructing disability through stigmatized solutions. It must be remembered that even stakeholders with disabilities may need training in the tools such as Universal Design that are available to designers.

The Travel and Hospitality Industry as Locus of Transformation

The travel and hospitality industry will be the site of the next major developments in Universal Design.

A typical legislated strategy for social inclusion employs the language of rights. It mandates access to government properties and services in the name of citizenship, human, or civil rights. It extends the argument to the business sector and mandates compliance through threat of sanction.

Such a strategy is sound and within the purview of government. Yet it is not sufficient.

Persons with disabilities in numerous countries report accessibility requirements that conflict within the same jurisdiction, corruption that allows regulations to be ignored, and a general failure on the part of those regulated to imagine any accommodation beyond the mandated minimum.

A parallel approach is to use the industry's profit motive to achieve accessibility, employment, & attitude change for the benefit of the disability community.

Aside from metropolitan transit and national rail systems the infrastructure of transportation and lodging - of tourism - is under private ownership. In the language of private business the laws protecting the rights of people with disabilities place them in the category of cost center or as legal risks of lawsuits to be managed. While establishing a necessary legal baseline against discrimination such laws evoke a resistance response that, in practice, prevents business from imagining people with disabilities as a lucrative customer base.

Over the past several years the disability community has had some success gaining the attention of the tourism industry with research such as that done by the Open Doors Organization that US travelers with disabilities alone spend an average of $13.6 billion annually on travel.[6]

During this period I have been researching, refining, and promoting a reconciliation of these two approaches to social change where legislative scaffolding sustains the market for profit-based incentive. While some countries may never adopt national civil rights legislation for people with disabilities, approval of the UN Declaration on the Rights of People with Disabilities will radically change the business and legislative ecosystems and raise expectations in the disability community. Tourism remains largely unprepared for the future impact of this UN document. As a global industry that is increasingly being held accountable to social responsibility metrics such as the inverse of Universal Design - Green Design[7] - tourism may become more receptive than governments themselves to accommodating persons with disabilities.

I have proposed to the Echoing Green Foundation the creation of a series of strategically located Centers of Excellence promoting Universal Design within the travel and hospitality industry. We call this application of Universal Design to tourism Inclusive Tourism and Inclusive Destination Development.[8]

Each Center of Excellence will work to standardize the diversity of accessibility laws, disseminate accessibility guidelines for hotels, train travel & hospitality industry staff, and promote the education and hiring of persons with disabilities in the industry. At the local level we will increase accessibility of the tourist destinations hosting the Centers and train a core of persons with disabilities as self-sustaining regional experts in Inclusive Tourism.

Expected outcomes include increased tourism infrastructure accessibility (hotels, airports, and transit systems), greater self-reported social inclusion of people with disabilities and disabled peoples' organizations (DPOs) (i.e. people with disabilities hired in the industry and DPOs contracted as travel industry suppliers), as well as people with disabilities positively portrayed as valued customers marketing by the industry.

This project will engage industry's self-interest in profit by recruiting and training an overlooked workforce, product development for this under-served market, best practices dissemination to an awakening industry, and marketing a new image of disability completing a feedback loop that encourages more in the disability community to travel.


Cultural factors influence the adoption of projects involving Universal Design as well as the development of the approach itself. These cultural factors include social groupings traditionally understood as cultures. They also include the communities of persons with disabilities as an aggregate and as sub-cultures differentiated by disability.

Universal Design, as a product of disability culture, represents an authentic voice of disability culture when understood as a design process and not a catalog of sanctioned and static design solution or "accessibility features."

Yet as a voice competing among other social systems and cultures Universal Design must be clearly articulated and intentionally directed.

One area of promise for shaping the Universal Design of the future is in dialogue with the cultures into which it is introduced. One vehicle for animating such a dialogue is the global travel and hospitality industry operating out of the profit, in addition to the rights and entitlement, motive. A network of Centers of Excellence of Inclusive Tourism and Inclusive Destination Development offers a scalable and sustainable mechanism for the continued development of Universal Design as an authentic voice of the disability community worldwide.

- 30 -



Dr. Scott Rains writes daily on travel and issues in the tourism industry of interest to people with disabilities. His work appears online at and . Rains' articles have also appeared in New Mobility, Emerging Horizons, Contours, Accessible Portugal, Audacity, Travel and Transitions, eTur Brazil, Turismo Polibea, [with]TV, and Disaboom among others.

For his research on the topic of Universal Design and the travel and hospitality industry he was appointed as Resident Scholar at the Center for Cultural Studies of the University of California Santa Cruz (2004-05).

He is active as a consultant and speaker.

[1] Compiled by advocates of Universal Design in 1997. Participants are listed in alphabetical order: Bettye Rose Connell, Mike Jones, Ron Mace, Jim Mueller, Abir Mullick, Elaine Ostroff, Jon Sanford, Ed Steinfeld, Molly Story, Gregg Vanderheiden. The Principles are copyrighted to the Center for Universal Design, School of Design, State University of North Carolina at Raleigh [USA].The Principles established a valuable language for explaining the characteristics of Universal Design. They are in common use around the world, sometimes with slight modifications, primarily one or two principles grouped together. Source: Adaptive Environments

[2] One hallmark of disability studies is its adherence to what has been called a "social model of disability" (Abberley, 1987), first suggested by Vic Finkelstein (1980) and other disability rights activists, in which disability is understood as a form of oppression. Although "social model" is the most common usage of the concept, I agree with Vic Finkelstein (2001, ¶. 2) that the phrase "social interpretation" is a better and more inclusive representation of disability studies standpoints. In this paper, I use "social model" to refer to the traditional historical-materialist version of the social interpretation of disability. In contrast, I use "social interpretation" to refer to the wider array of disability theories in disability studies (e.g., disability identity, disability embodiment, disability discourse). As a whole, social interpretations of disability contrast with typical educational views wherein "disability" represents innate individual deficits. In disability studies, the disability-as-deficit notion is referred to as a clinical or medical model and is rejected as the basis for understanding the lived experiences of disabled people because it tends to pathologize difference and rely upon expert knowledge (i.e., physicians, special educators, rehabilitation counselors) to "remediate" difference (Society for Disability Studies, Guidelines for Disability Studies, ¶ 3). Disability Studies in Education: Readings in Theory and Method (2005, New York: Peter Lang) Source:

[3] Source:

[4] Handbook of Disability Studies, Gary L. Albrecht, Katherine D. Seelman, Michael Bury, 2001 Sage Publications , ISBN 076192874X

[5] Personal communication, 2004

[6] Open Doors Organization, 2005

[7] It [Universal Design] has a parallel in the green design movement that also offers a framework for design problem solving based on the core value of environmental responsibility. Universal Design and green design are comfortably two sides of the same coin but at different evolutionary stages. Green design focuses on environmental sustainability, Universal Design on social sustainability. Source:

[8] Sources: and

To all readers of the blog her'ees wishing you a new year full of success and adventure!


Below is the text of the opening keynote of Presentation to ICAT 2007 held at the UN in Bangkok, Thailand. My appreciation to the various ministries of the Thai government, UNESCAP, and several disabled peoples' organizations (DPOs) including Disabled Peoples International - Asia Pacific (DPI-AP) and the Asia Pacific Disability Forum (APDF).

Thumbnail image for Scott Rains - RollingRains.jpg


Before I begin I would like to dedicate my comments today to my friend Topong Kulkanchit. I met Topong in 2005. We decided to work together to see that a conference was held in 2007. Mostly through his hard work early preparations were made so that Saowalak Thongkuay and Sawang Srisom their team could make this event a success. Thank you. I look forward to our next gathering in Singapore in 2009. I challenge everyone here to continue the work that Topong poured his life into. 

Models of Disability 

We are here to do some thinking on a global scale. That's a big task. Big thinkers like to give names to the boundaries they put around ideas - handles to make them easier to grasp. When we talk about disability we usually talk about these "idea packages" as models of disability. 

The Charity Model, the Medical Model, and the Social Model are the names we usually use. The first two present people with disabilities as recipients rather than as sources of action.

The Charity Model places people with disabilities as recipients of the moral responsibility of others to care for them. The Medical Model further limits responsibility to those with professional medical knowledge. Both models define the limits of the world that a person with a disability "really" belongs to: The world of family or its extensions of church or service organizations in the Charity Model and the world of the doctor or their delegate in the Medical Model on the assumption that the disabled person's highest and constant concern in life is to be "cured." Both models prevent people with disabilities from political expression and economic participation as adults because both models assume worlds that are too small for real people. 

 After an introduction like that it is obvious that I am going to endorse the Social Model. It claims that the world where people with disabilities "really" belong is the real world, the whole world - like everybody else! That's a big world. 

 Universal Design is what lets us live at home in this world. Wheelchair user and architect Ron Mace, with his colleagues, set the foundation for everything we do at this conference by creating Universal Design more than 30 years ago. These thinkers in the Disability Rights Movement understood that our desire to be full participants in society required us to develop a simple elegant solution to achieve accessibility. The seven principles defining Universal Design start from the reality that not every individual has the same stature, strength, or range of abilities. Diversity between individuals is the "normal" in any collection of human beings - change in ability is the defining characteristic of each individual over time. Accessibility in tourism improves quality for the growing senior population too. Universal Design is a framework for the design of places, things, information, communication and policy to be usable by the widest range of people operating in the widest range of situations without special or separate design. Most simply, Universal Design is human-centered design of everything with everyone in mind. 

Trend 1: Creation of a Market 

 I said we're here to think but to be more complete I should add that we're here also to dream. Imagination becomes alive in every person's life when the limits of their world go from family to some larger institution and finally on to the limitlessness of free participation in the whole world. Dreaming is the first step in thinking on that global scale - and everyone who works in the global travel industry knows what we do. We sell dreams and we make them real. 

As the disability community around the world acts on this dream of global participation the travel industry is here providing for them as what they have become - a market. I have been invited here to talk about global trends in accessible travel. I have just told you the first trend. A group of people with disabilities have gathered. They are the actors. They are the political and economic force. They, we, came here to say that we have a dream. That dream is the freedom to travel. They have become a market and they have their own voice. As we gather for two days in Asia another group of people from all over Europe are going home. They have just finished two days of meeting on accessible travel at the European Network for Accessible Tourism - ENAT run by Ivor Ambrose. This trend - this dream - is global among people with disabilities. Now let's think together. 

 Trend Two: The Rights-Based and Profit-Based Approach to Disability 

The second trend we see is that a "profit-based approach to disability" is inseparable from our conference theme of "a rights-based approach to disability." Aiko Akiyama of UNESCAP will speak to us later about the Biwako Millennium Goals where rights and development converge in tourism. Is there a profit-based approach to disability for the travel industry? Research done by Eric Lipp and Laurel van Horn of the Open Doors Organization have taught us that American adults with disabilities or reduced mobility currently spend an average of $13.6 billion U.S. a year on tourism. In 2002, these individuals made 32 million trips and spent $4.2 billion on hotels, $3.3 billion on airline tickets, and $2.7 billion on food and beverages while traveling. In the UK 10 million adults with disabilities have an annual purchasing power of 80 billion pounds sterling. In 2001 economically active Canadians with disabilities had $25 billion Canadian dollars available. Americans with disabilities or reduced mobility have $175 billion in purchasing/consumer power. Cruise lines know from research that people with disabilities favor cruise vacations at 12% compared to 8% of the general population. 

Studies also show that people with disabilities are loyal customers: 59% report that they plan to take another cruise. Creating accessible cruise ships, accessible ship terminals, accessible ground transportation, and accessible tourist destinations in port cities is not charity. It is good business! In a few minutes I will tell you how stakeholders in North & South America are working together to build that business. 

  Trend Three: Standardization in the Years Ahead 

 Two years ago a group of us got together in Taipei and began to plan for today. Then it was easy to report on trends in accessible tourism. The pattern was clear. The trend in 2005 was experimentation and local standardization in controlled regional environments. New "islands of innovation" were evident around the world. In fact, in most cases they were either actual islands like Crete, Hawai'i, Tenerife, Japan, St. John's Virgin Islands, and Tasmania or they were geographically isolated regions like Western Australia. The trend in 2007 is less about new invention and more about standardization across larger areas and on an international level. It is a new stage of maturity but it will be over in about two years when we meet next in Singapore - this time with our European friends. For these next two years the main trend around the world will continue to be establishing common practices and agreeing on standards. Sometimes it will feel like a tug-of-war; pulling in two opposite directions: one direction pulls toward a rights-based approach to standards and the other a profit-based approach. The first starts with persons with disabilities as citizens; the second as customers. 

The first approach speaks in the language of governments; the second the language of business. Effective standards result when people with disabilities are active in defining both approaches. In fact, that is what this organization is about. It is a voice of people with disabilities in conversation with government and business to serve the interests of all three groups regarding travel and hospitality. 

 Let me anticipate 2009 with a grandiose statement about the historic importance of today: The tourism industry has become a vehicle for social good. Industry practices increasingly honor green design and ecologically responsible practices. With Universal Design tourism has also become a vehicle for what the Disability Rights Movement has fought so hard to articulate and to achieve for more than 30 years. 

So here today we set the Disability Rights Movement on a new path accompanied by partners from business and government. That path of promoting accessible travel will pass through every country in Asia. The trend when we meet again in Singapore in 2009, this time with our colleagues in ENAT from Europe, will be the emergence of Centers of Excellence that strategically disseminate sustainable innovations, grounded in standards, and fluent in customer service respecting the rights and dignity of people with disabilities. After ICAT 2007 I will spend time consulting with government and industry leaders in Pattaya to see if we can make Thailand one of the first of those Centers. I will assist UNESCAP create a set of guidelines From my work around the world I have three cases that illustrate the current trend toward creating standards of good practice: one example in South America, one in North America, and one in Africa. South America brings four countries together with the cruise industry around accessibility. North American national park officials draw in a business partner and showcase accessible cultural tourism. Africa is shaping a continental accessible tourism market through the research and advocacy of an entrepreneur with a disability who promotes safaris. 

  Three Cases Example 1: South America 

The Inter-American Institute on Disability and Inclusive Development has formed a network to develop accessibility along the cruise corridor from northern Brazil to Tierra del Fuego at the southern tip of Argentina. In 2007 disability advocates and organizations, government, academics, cruise lines, and the land-based tourism industry joined together as stakeholders to begin to adopt standards, infrastructures, and practices that guarantee a consistent quality of travel experience between Brazil, Uruguay, and Argentina for seniors and others with disabilities. The major activity at this stage is in Brazil which will host an international conference on Accessible Tourism in May 2008. Individuals in the South American network have begun to appear in the media, speak at tourism conferences, and write articles on the value of this market of travelers with disabilities. Data is being collected on the number of people with disabilities and their purchasing power. 

One of the most rewarding things I do now is work with university students and young professionals in South America guiding their research, their career choices, and their businesses. At the same time accomplished architects like Veronica Camisão are drawing up plans for improved ship terminals. Wheelchair-using Brazilian architect Silvana Cambiaghi has published Brazil's first full-length book on Universal Design. Museum specialists like Viviane Panelli Sarraf simultaneously provide attractions of interest to international and domestic tourists with disabilities by making museums and other cultural sites accessible. Dada Morreira, Ricardo Shimosakai, and others with disabilities sell accessible land-based excursions that include whitewater rafting, jungle off-road treks, multi-sensory walks, parasailing, and exhilarating treetop tours. In addition to this explosion of new businesses by people with disabilities, this group has written new regulation on maritime access to standardize accessibility in cruise ship terminals and on passenger ships serving Brazil. 

Industry and government, led by professionals, advocates, and business owners with disabilities have identified an underserved market and are building a strategy together to serve it. Research shows that the more cruises a person takes the more likely he or she is to disembark in port and buy a land-based excursion. 

We know that more people with disabilities are cruising. We also know that they tend to take repeat cruises more often than the general public. They will grow disproportionately as a market inclined to take land excursions. Argentina has planned ahead for this trend. It is holding its first rural workshop on serving people with disabilities for the rural tourism industry that will see some of these cruise passengers on land excursions. Keep in mind that disability accompanies aging. The Open Doors Organization recorded that about 50% more of the existing group of Americans traveled between their 2002 and 2005 studies - even though it the travel industry had not done anything to make it significantly easier to do so. That group of people with disabilities and the leisure to travel is about to expand as the huge post-WWII generation ages. This market is big and travelers will reward those who build welcoming environments to accommodate them. 

ake the example of the United States. 

  Example 2: North America 

 In the United States this global trend toward standardization on best practices by government, industry, and people with disabilities takes place on Alcatraz Island. Many people know this steep rocky island near from San Francisco from movies about its time as a maximum security prison. As the saying goes, "Break the rules and you go to prison. Break the prison rules and you go to Alcatraz." Today the island is a National Park run by some of the most passionate supporters of disability rights in the US Park Service. Early in November I had the opportunity to inspect the island with the National Accessibility Center from Indiana University. The park is a model for the entire world and continuously hosts international park and government officials. The practices used at Alcatraz are further disseminated because one out of four visitors comes from outside the US and brings their experience home. The message of accessible tourism is not only coming from conference like our or ENAT in Europe or the one this May in Brazil. Every day people from Asia are seeing accessibility in action at Alcatraz. Physical access for the mobility impaired was one of the first barriers to be addressed on the island. More than a decade ago National Park Rangers, including James Adams and Rich Weiderman, invented a tram system for the island that anticipated current trends calling for green and sustainable development in tourism. Using an electric motor designed for the tractors that pull jet airliners at airports they applied Universal Design principles to manufacture this uniquely powerful but non-polluting tram. It was estimated that it would serve 15,000 park visitors in its first year. Everyone was surprised to find that 30,000 used it. Today it averages 70,000 to 80,000 users annually. Keep in mind that about 25% of these users are people who bring the expectation of such accessible and eco-sensitive service back to their home park systems. The island can only be reached by boat and only one company, Alcatraz Cruises, serves the island. Early in their contract the cruise line saw that they needed to invent a new type of dock and ramp system. Doing so made them the only cruise facility on the West Coast of the USA able to accommodate passengers 365 days a year in all extremes of weather and tides. I, for example, had no difficulty getting off the island the day 580,000 gallons of tanker fuel spilled in the Bay near the island and the park was systematically being shut down for the emergency. 

 Standardizing on the dock design and evacuation practices perfected at Alcatraz National Park disseminates good physical design and safety policy. It also affirms a profitable collaboration between business and government where innovation to achieve accessibility resulted in better service for those with no disability. Program accessibility, or accessibility to all the services and benefits offered by the park beyond simple physical access, is another area where Alcatraz first set the standard and then became the living university teaching by example. Alcatraz was the first park to adopt audio walking tours narrated in the first person voices of rangers, former prisoners, and guards. 

The approach was so successful that the tiny recording company that produced the first tours became the largest in the world in that field and was just recently purchased by a television channel. Once again, accessibility proved to be profitable and trend-setting. 

  Example 3: Africa 

 The final example, Africa, represents something different. One of Africa's most popular forms of tourism is the safari. It operates in isolated areas. That isolation means the safari industry has less structure for formalizing best practices. In this case, the significant current trend is the result of the vision of a European entrepreneur who, with a vision and his sturdy wheelchair, has just completed visits to over 130 hotels and tourism destinations throughout the continent. Gordon Rattray runs Able Travel. On his research tours he is able to spread standards through his individual consultations. Here neither government nor industry are in the lead. Leadership comes from within the disability community itself. The end result of Gordon's accessibility audits throughout Africa will be a published tour guide, "African Safaris for People with Limited Mobility". In that way his work promotes adoption of standard practices much as US author Candy Harrington does through her magazine Emerging Horizons and her various books, "101 Accessible Vacations," "There is Room at the Inn," and "Barrier-Free Travels." Bruce Cameron has taken a similar approach to standards promotion through his book "Easy Access Australia" and frequently contributes to academic and policy work with Australian academics like Dr. Simon Darcy and Dr. Tanya Packer. Mary Chen in Malaysia will launch the disability lifestyle magazine, Challenges, in Malaysia in January where I will write on travel. I have been asked to edit a special issue on travel and disability for the academic journal, Review of Disability Studies published by the University of Hawaii. Dr. Sunil Bhatia has also invited academics to contribute articles specifically about Thailand to the journal of the Design for All Institute of India. I invite any of you here today who would like to submit an article or discuss an idea for an article to talk to me during the conference. Gordon Rattray's work in Africa is a "profit-based approach to disability" where he establishes himself, a person with a disability, as the expert on an entire continent. As an individual consultant he brokers and disseminates standards in a region where only a sparse business and social network serves the accessible tourism market. In contrast, the Inter-American Institute on Disability and Inclusive Development takes a "rights-based approach to disability." South America is a heavily networked environment that produced the important accessible tourism document in 2004 known as the Rio Charter: Universal Design for Sustainable and Inclusive Development. It is further linked by a flourishing route of cruise ship destinations sharing similar needs. The orientation to disability rights of the Institute emphasizes the experience of the organization's founder, Rosangela Berman-Bieler, who worked with Judy Heumann to establish the Disability & Development program of the World Bank. Both women are wheelchair users and professionals in international development. In the United States with Alcatraz National Park we see yet another model. Here the key professionals working in the National Park System and the contracted cruise line do not have disabilities themselves. 

There has been a systemic adoption of disability rights values by this government agency and this business -- although only through the sustained pressure of these professionals from within and sometimes with the addition of pressure such as lawsuits from without. Here professionals lacking disabilities guide the institutions through their own sense of justice, legal obligation, and business opportunity. As a prominent international tourism destination what they have created becomes a school of Accessible Tourism for any visitor who cares to learn from it. Tourism ministries, and the industry they support, have begun to apply results from studies about our travel behavior and purchasing power. Facility construction and business practices based on Universal Design that were once considered innovations and were known only locally are now better known and adopted worldwide. 

There is increasing consensus on what are proper - and profitable - ways to attract us as a market. The fact that this conference takes place today through the generous sponsorship of the Thai government with support from the tourism industry is one world-class demonstration that thoughtful leadership has recognized the value of the full participation of all its citizens and how concrete action to include citizens with disabilities creates the environment of hospitality that attracts tourists from around the world.


 Let me end by speaking in sequence to the three groups that will make accessible tourism possible: governments, businesses, and the disability community. 


 Governments, when we promote a rights-based approach to disability we commit ourselves to a tradition that affirms the dignity and worth of every individual human being. We raise the individual beyond the context of the body and its functions or limits; beyond, family, race, or nationality. We state that we support the rule of law and hold our governments accountable for protecting the freedoms that we believe are due to all human beings. By promoting the UN Declaration on the Rights of Persons with Disabilities we are actually holding more than our own national government to this standard. 

We are claiming that all governments of all nations must unequivocally promote and protect the right to full social inclusion of all people with disabilities throughout their lifespan. A rights-based approach to tourism claims that there must be equal opportunity of access for people with disabilities allowing them to enjoy the benefits of travel and hospitality whether for business or for leisure. That access must be physical as with the design and construction of buildings or transportation systems. That access must also be to the non-physical benefits available to travelers without disabilities. 

This could be as simple as receiving the same respect offered to other customers during a transaction. It could be as complex as comprehensively planning safety and evacuation procedures appropriate to people with various sensory, intellectual, and mobility capacities.


 Businesses, when we promote a profit-based approach to disability we acknowledge that a business must pay attention to its profitability - once it has met the minimum standards set by law and by best practices. We expect to see variation between the products offered by different businesses. We expect to see accessible tourism products both inexpensive and extravagant because our community includes members who can afford both. In fact, we count on businesses to take the lead in innovation. 

We trust them to do their work so well that, like moths to flame, we will want to experience the products that they have developed to entice us. So let me offer to the industry this cheeky invitation from Jesús Hernández, accessibility director of Spain's ONCE Foundation, first in its original Spanish: "No te preocupes de mis derechos, preocúpate de mi cartera"! [Spanish] "Don't overly concern yourself about my rights, pay attention to my wallet!" 

Businesses do what you do well! We want to spend our money! Studies show that people with disabilities have that legendary trio of characteristics that all travel agents look for: the desire to travel, the means, to travel, and the freedom to travel. In fact, the study I quoted earlier from the Open Doors Organization predicted that those billions of dollars spent on travel by Americans with disabilities could easily double with the creation of appropriate travel products. Now that's a bold prediction! 

People with Disabilities 

 People with Disabilities, when we travel we represent more than ourselves because we are part of a community. As a person with a disability you carry two items of unusual value -- especially in combination. Both tend to surprise those you meet as you travel. The two items are money and pride. 

By money I mean more than the change in your pocket. By pride I mean that confident self-determination of knowing who you are beyond any economic measures of worth. 

 The very fact that you have a disability and travel suggests something about your economic condition. It indicates that you have credit, savings, education, maybe a profession that requires travel. It demonstrates more importantly that you have the ability to make decisions about the course of your life for yourself. That combination of means and dignity are potent tools of social transformation. 

 Travel the world today and you will find that there is a hunger for community and solidarity among people with disabilities. As an exchange student, backpacker, business or vacation traveler, your identity as a person with a disability gives you access to faces of the tourism industry that others may not have. Some are positive. Some need improvement. 

 The next two years will be a surprise to those in the industry who have not yet prepared their profit-based approach to disability. Some will be asking you to help. You have an opportunity to contribute and to shape the travel industry. That may be with the rights-based emphasis through government, education, or policy. It may on the profit-based side through invention, construction, marketing, or business creation. Whatever opportunity you choose, take your pride - and your money - on the road. Travel. Teach the industry and level the path for the ones who come after you! 


 Scott Rains, D. Min. writes daily on travel and issues of interest to people with disabilities occurring in the tourism industry at His research on the topic of Universal Design and the travel and hospitality industry has included appointment as Resident Scholar at the Center for Cultural Studies of the University of California Santa Cruz (2004-05). He consultants globally on accessible travel & hospitality. He can be reached at

Scott Rains believes that if the world is more accessible, tourism will make more money due to more people traveling.

Scott Rains believes that if the world is more accessible, tourism will make more money due to more people traveling.

If you'll do a Google search on the Rick Hansen Foundation and the Global Accessibility Initiative, you'll find a map tool where people with disabilities can add their comments on how accessible an area or a destination are for people with wheelchairs and other disabilities. There are very good directories for Australia, the United Kingdom, Scotland and several other countries. But, to make the world more accessible for all of us, the tourism industries have to decide that they're going to make accessibility a part of the data they have available for consumers in all areas of advertisement and promotions and through every vehicle of marketing that the various tourism industries have at their disposal. We have to help the tourism community see that we're a viable market that spends money on travel, and that we are customers to whom they can promote and sell their travel products and destinations.


Editor's Note: Dr. Scott Rains has used his disability, his love of travel, his genuine concern for others in wheelchairs, his goal of making the world more accessible to all people and his doctorate in ministries to create a consulting business. He has considered his disability and identified the advantages and the opportunities that disability affords him to become one of the leading authorities and most sought after experts in this area to make worldwide changes. He also works for the Rick Hansen Foundation, which has as one of its goals to change the world and make it more accessible for anyone with a disability. Part 5 of a 5 part series.

Arco Iris sobre La Felguera

Image via Wikipedia

Por Dr. Scott Rains,

Traduzido por Patricia Ribeiro

À medida que a Índia passa a ocupar um lugar central no cenário mundial e mais pessoas querem descobrir o passado e o presente desse país, as viagens para a Índia e na Índia adquirem uma importância nunca vista (e felizmente, os visitantes com deficiência são uma parte crescente desse cenário). O turismo em si é uma indústria geradora de recursos em qualquer país, quer o visitante tenha deficiência ou não. Atender as necessidades de TODOS e tornar as viagens confortáveis deve ser o foco principal da indústria da hospitalidade. O que está sendo feito e o que pode ser feito para receber esta bem-vinda tendência? Devemos ter em mente, porém, que o turismo não se reduz a pontos turísticos. Este artigo explora, portanto, o princípio inerente e os pré-requisitos essenciais que devem governar todos os aspectos do turismo: o Desenho Universal.

"O Turismo Inclusivo é um movimento global para garantir a participação social  plena de todas as pessoas com deficiência no turismo, na cidadania, e na contribuição cultural - e, nesse processo, garantir o mesmo para todas as outras pessoas", escreve o Dr. Scott Rains, um ativo defensor do turismo inclusivo. Com este aviso: "Por ser uma pessoa com deficiência que pesquisa, escreve e faz palestras sobre o Turismo Inclusivo enquanto prática e referência para as políticas do turismo, tenho a tendência de ilustrar seu potencial utilizando o turismo com deficiência como exemplo. Naturalmente, aplico o Desenho Universal, enquanto desenho centrado na pessoa, à medida de meu próprio corpo e de suas capacidades". Ele explica que a estratégia para orientar o turismo deve estar em acordo com o Artigo 30 da UNCRPD (Convençao das Naes Unidas sobre os Direitos da Pessoa com Deficiência).


Dentro de um aquário sobre a minha escrivaninha, um irrequieto peixinho dourado acompanha o progresso de minha caneta sobre a página. Um par de passarinhos engaiolados no canto da sala troca bicadas e conversa em palavras de pássaro cuidadosamente escolhidas. Cada um desses animais têm acesso à minha casa - cada qual dentro de um espaço estritamente definido. Porém, o mero acesso é muito menos que a inclusão. Nenhum deles jamais participará de nossa vida familiar da mesma forma que nossa cachorrinha de estimação, que encara isso como um direito de nascença. O acesso pode ser suficiente para a sobrevivência, mas somente a inclusão torna possível a alegria da participação.

Falta inclusão ao turismo. O artigo 30 da UNCRPD deixa claro que isso não pode continuar assim. A observação à distância, de dentro de um aquário, ou o comentário feito do lado de fora dos espaços e atividades que as pessoas sem deficiência podem usufruir é coisa de animais de estimação, e não de gente. O Turismo Inclusivo é a aplicação sistemática do Design Universal por parte da indústria de turismo e da hospitalidade a cada estágio do ciclo de vida de seu produto, serviço e políticas.

O Turismo Inclusivo começa por uma visão das pessoas como são, em toda a diversidade de suas habilidades. Ele lança um olhar sobre todos os estágios do ciclo da vida humana: crianças, adultos, e idosos. Ele vê todas as pessoas, quer a que anda com uma bengala numa escola, a que usa botas da moda num shopping, ou a que volta do poço da vila carregando um pote de água na cabeça.

É óbvio que uma definição tão concisa desperta questões como, "Por que não 'acessível' ao invés de 'inclusivo'? E:  "O que é Desenho Universal?"

Quando as pessoas ouvem a palavra "acessível" ligada ao turismo, elas pensam ter uma boa noção do que isso significa. E aí está o problema.

Quase todo mundo crê saber o que "acessível" significa, mas como o termo nunca foi claramente definido, quase todo mundo inventa sua definição pessoal para ele. Essa é uma receita desastrosa. Se os viajantes e a indústria do turismo não tiverem uma linguagem comum, pode-se imaginar com que frequência surgirão desapontamentos e conflitos. Se os donos de hotéis e a construção civil não tiverem uma forma de descrever as soluções que buscam para o design e a construção, qual será a probabilidade de que ambos os lados cheguem a um resultado satisfatório?

O Turismo Inclusivo, e o conceito relativo a ele, Desenvolvimento do Destino Turístico Inclusivo, têm sido definidos em palestras e em artigos científicos justamente para evitar esses enganos. O termo "inclusivo" refere-se ao conceito de inclusão social - o oposto da exclusão encontrada no estereótipo, na piedade como um substituto para a justiça, e na discriminacão ostensiva.

Um lugar pode ser acessível ao mesmo tempo que as atividades desenvolvidas nele ou as atitudes de quem ali trabalha sejam extremamente excludentes. Um lugar pode até ser feito acessível para um cadeirante de uma forma que impeça o acesso de uma pessoa cega ou de alguém com 2,5 metros de altura.

A inclusão se refere à aceitação ativa de uma pessoa ou de um grupo por outrem. Ela envolve comunicação no plano dos valores e tradições. Ela é um processo cultural de transformação no qual todos os participantes são adequadamente valorizados. As identidades culturais podem permanecer intactas, mas a qualidade da interação expande a capacidade para a tolerância e o entendimento entre todas as partes.


De uma certa forma, o Turismo Inclusivo, como uma abordagem, exemplifica o que de melhor se pode esperar para uma experiência  pessoal do turismo e seu impacto social enquanto indústria.

É por isso que o Turismo Inclusivo nunca pode ser dissociado dos sete princípios do Design Universal. Uma abordagem do turismo - uma abordagem que sirva para todas as pessoas com deficiência de modo a não estigmatizá-las e isolá-las ainda mais como objetos de piedade - exige o Design Universal, assim definido: O Design Universal é um sistema para a criação de espaços, objetos, informação, comunicação e políticas a serem usados pela maior gama possível de pessoas operando na maior gama possível de situações sem a necessidade de um desenho especial ou à parte. Simplificando, o Design Universal é o design, centrado na pessoa, de tudo  para todos.

O Design Universal também é conhecido como Design Inclusivo, Design para Todos e Lifespan Design ("Design para Toda a Vida"). Ele não é um estilo de design, mas uma orientação para todo processo de criação que parta de uma responsabilidade para com a experiência do usuário. (Fonte: Adaptive Environments)

O Turismo Inclusivo envolve um círculo de comunicação entre os viajantes, os profissionais da indústria do turismo, os responsáveis pela definição de políticas, os designers e construtores como partes interessadas no melhor resultado possível para todos. Esse resultado é previsível e compreensível enquanto produto e qualidade de serviço ao consumidor.

Quando a indústria se mostra hesitante em suprir as necessidades dos consumidores de um modo que elimine a exclusão, pode se tornar necessária a aplicação de políticas de proteção. Porém é preferível descobrir - ou inventar - práticas que se mantenham através dos mecanismos usuais do mercado.

Uma transformação nas atitudes, práticas e design acontece quando os viajantes com deficiência são reconhecidos por  seu potencial como clientes rentáveis. Até mesmo o viajante mais relutante ou com a maior deficiência poderá usufruir de uma viagem com sucesso se a indústria do turismo estiver atenta à inclusão a cada passo do caminho. Quando isso ocorre, os viajantes podem saber exatamente como complementar, com sua própria engenhosidade e seus próprios recursos pessoais, o que lhes é oferecido.

Quando a indústria do turismo começa a ponderar seriamente as variações nas capacidades dos indivíduos que ela serve, surgem questões práticas relacionadas à criação de produtos, espaços ou políticas que honrem os indivíduos com diferentes habilidades. A necessidade de princípios que orientem o design e as decisões na construção é uma das razões pela qual o Turismo Inclusivo é indissociável do Design Universal. Nesse caso, são os Sete Princípios do Design Universal que fornecem a visão coerente de excelência na indústria do turismo. Estes são os sete princípios:

  1. Utilização equitativa: o design não põe em desvantagem ou estigmatiza nenhum grupo de usuários.
  2. Flexibilidade de utilização: o design se presta a uma vasta gama de preferências e habilidades individuais.
  3. Utilização simples e intuitiva: o uso do design é de fácil compreensão, independentemente da experiência, conhecimento, habilidade linguística, ou nível corrente de concentração do usuário.
  4. Informação perceptível: o design comunica eficazmente ao usuário a informação necessária, independentemente das condições ambientais ou das habilidades sensoriais do mesmo.
  5. Tolerância ao erro: o design minimiza os riscos e as consequências adversas de ações acidentais ou involuntárias.
  6. Esforço Físico Mínimo: o design pode ser utilizado eficiente e confortavelmente com um mínimo de fadiga.
  7. Dimensão e espaço de abordagem e de utilização: são oferecidos dimensão e espaço apropriados para a abordagem, acesso, manuseio e utilização, independentemente da estatura, postura ou mobilidade do usuário.

Duas aplicações específicas do Design Universal se desenvolveram desde o surgimento do conceito no início da década de 1970 e da formulação desses princípios em 1997.

A primeira aprofunda significativamente o princípio 4. Essa abordagem é conhecida como Design Universal para Aprendizagem. Ela é mais apropriada para a indústria do turismo no planejamento de treinamento profissional ou no design de material voltado para a educação do consumidor ou a promoção de produtos. O maior divulgador do Design Universal para Aprendizagem é o Trace Center na Universidade de Wisconsin-Madison.

A segunda abordagem só foi formulada recentemente. Ela é focada num aspecto específico do Turismo Inclusivo - o turismo aquático. Notavelmente, foram a liderança do ministério do turismo e a indústria do turismo  na Índia que aceleraram a formalização dessa abordagem como os Princípios Waypoint-Backstrom.

Esses princípios, primeiramente publicados no periódico Design for All India do Instituto Indiano de Tecnologia, também começa com uma afirmação inabalável dos Sete Princípios do Design Universal. Daí por diante, eles especificam áreas de ênfase particular no design inclusivo num ambiente marinho.

Soni Smarajan é um designer de produtos turísticos indiano e vice-presidente de uma empresa de gerenciamento de destinos turísticos. Ele escreveu um artigo intitulado "A Criação de um Produto Turístico Inclusivo: Desafios na Índia".  Nesse artigo, ele observa que avanços na medicina podem fazer com que algumas deficiências desapareçam, enquanto que o uso em excesso de novas tecnologias como os teclados de computador e os joysticks por parte dos jovens pode tornar outras deficiências mais comuns. Ele sugere, como um caminho apontando para o futuro, a orientação do Design Universal de um modo flexível e centrada no usuário.

Desse modo, Samarajan cria um paralelo ao que se define como a "definição evolutiva de deficiência",  sendo a deficiência compreendida como uma interação entre a variabilidade humana das  capacidades e as respostas socialmente construídas a essas diferenças nas capacidades.

Esperamos ter apontado suficientes caminhos para a indústria do turismo, os departamentos governamentais e todos aqueles associados ao turismo para que façam com que os viajantes se sintam em casa. Mas todos esses são conselhos para os anfitriões. E quanto aos receptores desses esforços, as pessoas com deficiência? Para elas, eis o que gostaríamos de dizer:

"Façam as viagens que sempre quiseram fazer. Sejam  as pessoas que preferem ultrapassar barreiras a esperar que elas desapareçam. Sejam turistas que enfrentam os desafios do turismo com senso de humor e espírito de aventura." Bon voyage!



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Accessibility is Not Inclusion

With gratitude to New Mobility magazine, Monica Guy, and Landscape Structures Inc., and Mão na Roda this article is making the rounds - and starting some conversations.

I encourage Rolling Rains readers to respond to Liz's post on Travels with Pain below.

A bit of background. Liz Scott is a travel writer with several excellent books to her name. This year was her first year addressing the SATH Congress. Liz lives - and travels - with chronic pain. The story below recounts intimately how pain and travel mixed on her return from the congress.

One further note. Liz is a neighbor. I did not attend SATH this year. I wish I had. If I had I can only image that we would have traveled together both directions and been support for each other. 

I owe my health to the quick response and level-headedness of Sherri Backstrom when several years go I very rapidly caught a blood infection on a speaking trip in Italy. Follow Liz's advice - and don't put your travel companions in difficult situations. Carry simple instructions about what to do in case of recurring medical issues that might flare up. Have an Emergency Contacts list with you. Pace yourself!

On Tuesday January 25, sometime in the late afternoon, I collapsed in a bathroom at Atlanta International Airport.

After a red-eye flight from California to Florida, an uncomfortable night spent not sleeping much inside a dirty motel room next door to a bunch of people having a drug party, a 4-day cruise on an enormous and confusing-to-navigate ship (ironically named theNavigator of the Seas),  SATH World Congress activities including 6+ hours spent sitting bolt upright in uncomfortable chairs, the stress associated with giving two speeches, an active in-port day on Cozumel, another night in the bad motel after sunburning myself on the beach in Ft. Lauderdale, and a coach-class flight from Ft. Lauderdale to Atlanta, it seemed that my body had had enough. While in the bathroom stall, a severe pain spike started up. At the sink, I got nauseous. Then my legs weakened and down I went onto the white tile floor.

I had not lost consciousness and was thinking rationally between massive spikes of pain. But after a couple of minutes, when somebody found me, I couldn't speak coherently. 


OK, so I followed instructions and kept this quiet until now. We are still compiling data for the "third half" of this resource - Northern California.

But now all you need to do is Google to find the new A Wheelchair Rider's Guide to the California Coast web site so I guess the secret is out.

Wheelchair Riders Site.png
From the site:

Exploring California's spectacular 1,100-mile-long coast can be a challenge for people who need a fairly level and firm path of travel--be they wheelchair riders, parents pushing strollers, or people who use canes or walkers. That's why we created this thoroughly researched online travel guide, with detailed information about a wide variety of sites, to help you make informed choices that suit your particular needs. (For more about our process and criteria, see How To Use This Site.

Among many adventures that await you are rolling across the sand in a beach wheelchair, fishing from an accessible pier, hiking an accessible trail along an urban waterfront or remote stretch of shoreline, viewing wildlife from a boardwalk, and picnicking among redwoods or on a blufftop, with waves crashing against rocks below. As you explore our beautiful coast, keep in mind that it is a priceless but fragile natural treasure in need of our protection. To learn more about the coast and how you can become involved in its future, see our Resources page.


Happy trails!

Related post:

Actually, I would love to attend CSUN's 25th Annual International Technology & Persons with Disabilities Conference! There is nothing like it anywhere in the world when it comes to technology and disability. There are always new products, projects, and contacts to make it worthwhile. And it is only a short flight from hoe for me.

But I am not going this year because I have the privilege of working with Benetech.

Benetech specializes in using technology to address unmet social needs using a model similar to a technology startup - grounded in their Return on Humanity business model:


Together with partners and supporters worldwide, we use technology innovation and business expertise to solve unmet social needs. Leveraging the intellectual capital and resources of Silicon Valley, we create solutions that are truly life-changing. Our global endeavors have been instrumental in improving literacy, human rights and landmine detection. With expanded support, we can accomplish much more.
For an 8-week period I will assist volunteers  get matched up with opportunities to serve.

If you want to volunteer as a book scanner or to describe graphics; if you are a publisher with books to donate to their online catalog of DAISY-fornatted works, or if you want to support their work financially have a look here:
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The full article will be online soon (and I am on my way back to the region.) In the meantime here's the cover photo of Forward the magazine of the Spinal Injuries Association.


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With photos from the second half of the past decade here is a photo essay on what sights there are to see from a wheelchair with the help of friends and the investment of industry stakeholders.

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